As we reset into a new year and decade, entering 2020 feels like a good opportunity to publish and share a few words on how it is to live with Epidermolysis Bullosa Simplex, with the main objective of attempting to raise awareness of the condition.... What it is and how it affects me Epidermolysis Bullosa Simplex (EB) is a hereditary condition I was born with. From the point of starting to walk my parents noticed signs of blistering on my feet, and it was at that point I was diagnosed with the condition. It is one of three strands of EB (Junctional and Dystrophic being the other two), and is not completely debilitating nor life threatening like the others, but as a result sufferers are more embedded into day to day society, which with it brings in other challenges. Since I’ve been able to walk I’ve kicked a ball. I’ve always been sporty and active growing up, so participating in activities whilst in pain is something I have had to adapt to. The condition mainly affect